Baby Charlie Denied Life by British Health System, EU Courts

The parents of Charlie Gard, the critically ill baby whose fate has been the subject of a protracted legal battle, say they have been granted more time to spend with him before his life support is withdrawn.

The debate over Charlie's life is about balancing the moral dilemma of parental rights versus the state's duties to protect the wellbeing of children. Charlie's parents disagreed with the hospital's conclusion, and that is exactly what they did.

Charlie is now receiving life-sustaining treatment at the Great Ormond Street Hospital, where the baby and his parents have lived for months following his devastating diagnosis of mitochondrial depletion syndrome.

According to the BBC, Connie Yates previously stated that if she and her partner were not allowed to take Charlie to the USA for the experimental treatment, they would put the money donated to them by members of the public toward helping other children with mitochondrial disease.

The 10-month-old has a rare genetic disease and brain damage - he is one of only 16 known to have mitochondrial depletion syndrome.

Doctors at Great Ormond Street Hospital were planning to withdraw his life support on Friday but have changed their minds.

Charlie's parents wrote: "We are utterly heartbroken spending our last precious hours with our baby boy".

Gard and Yates told High Court judge Mr Justice Francis that they had raised £1.3m online to take their son to the United States for a treatment called nucleoside therapy.

Before the European court, judges in the United Kingdom had ruled that it was lawful for the hospital to withdraw life-sustaining treatment because the child would suffer harm if his present suffering was prolonged without any realistic prospect of improvement and that the experimental therapy could not provide real benefits.

It's absurd that a court can claim to know what's in Charlie's best interest.

His parents Chris Gard and Connie Yates shared their pain and also expressed their anger against the doctors who have refused to let Charlie come home and die.

Ms Yates previously indicated the money would go towards a charity for mitochondrial depletion syndrome if Charlie did "not get his chance". The parents said hospital personnel told them they could not arrange transport for Charlie and, when the parents offered to pay for it, the parents said the hospital personnel told them that was not an option.

His parents said they had been denied their final wish to be able to take their son home to die and felt "let down" following the lengthy legal battle. From there, the condition quickly escalated and Charlie has been hooked up to a ventilator ever since. In October, he was transferred to the Great Ormond Street Hospital in London.


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